It is funny how things can change, and your life takes on a new direction. For me, it has been this organization. I honestly feel like I am a vehicle through which these ideas and information are funneled through to get out there to people like you, who actually read this!
I get asked quite a bit, “how did you do that” referring to the website, and my honest answer is “I have no idea”. I am amazed myself and often laugh because to those who really know me, my tech skills are pathetic at best! I think that is one of the greatest things that has come out of creating A Path To Hope….my confidence in myself. I had no idea I was capable of doing something like this and, frankly, it has come easily to me (again, I am only the vehicle). I had spent many many years insecure, self conscious, trying to discover who I was and often trying to be something I was not. I still have those insecurities ( like why the —did I color my hair again ????? Because I felt the pressure of people telling me I should…..that won’t happen again! ) I finally feel empowered, I feel I have a purpose and I feel so blessed that my children are heading in the direction of finding their own identity.
The feedback that I have gotten is worth everything to me. Obviously, being a nurse, I have a desire to care for the wellbeing of others, but being able to assist during a (pardon my language) a really shi—y situation, is a feeling like no other. I literally had NO ONE to turn to during our most difficult time and would have given anything for guidance and information I could trust. I pray that the information I provide is reaching the people it needs to and that their own path to hope can start
I have big plans for the spring and will just continue to “wing it” and see how they turn out! Seems to be working for me so far!
Thank you for your support, simply having you read this makes me happy and your comments on face book are treasured ( even the bad ones!)
I can not believe how much this idea has gown into something that is reaching so many people. I am so excited about be able to bring this information to so many in a way that works in this day and age.
The STEPS Resource Fair, an idea that literally came to me at 3 am one morning, is now coming to life and I am THRILLED that a tangible connection to these area services will be made by people of our community.
I contacted many area agencies and individual providers and in all cases but ONE the answer was an immediate yes... Yes to hosting a table , yes to educating our community about the services they offer, yes to supporting my cause to spread the word.
I can not begin to tell you the level of personal satisfaction it gives me to match people with these services and hear that it has helped. I do not get much feedback from my site as it is a very private matter but when I do, it warms my heart. Thank you so very much for your kind words, your "likes" and your comments. Please stop by on March 2nd at LMS at say hello. I'll be the very tired looking one !
What a year this has been! It is funny how life has a plan, and it may take many many years for that plan to evolve, and it may be something you never expected, but when it finally unfolds - it just feels right.
Being a mother was the greatest gift I ever recieved, it came naturally to me, I embraced the role and all it's responsibility. Being a nurse helped with the expected bumps and bruises but even that could not prepare me for some of the obstacles that came to my children.
My oldest daughter was born with a cleft lip and palate. We discovered it at 20 weeks gestation so we were able to plan. I went into detective mode researching every craniofacial surgeon I could find, asking for their stats, getting recommendations from their patients, etc. Luckily, we live where we do and I found an amazing surgeon at C.H.O.P who cared for Grace through her first 3 surgeries. He was gentle and kind and Grace adored him telling him when she was just 2 yrs old "thank you for fixing my lip". He retired before Grace was finished her repairs and we switched to a surgeon at DuPont who was equally amazing. Grace had a 9 hour surgery the summer before last wth a complete upper jaw reconstruction. She never once complained and in true to her fashion, had a sence of humour through it all.
Why am I droning on about my children? Well first of all, I can, it's my blog (!) , but because after everything that has come our way my perspective as a parent, a friend, a daughter, a wife, and a mother has changed. I finally feel myself "growing up" and realizing that the things I used to worry about no longer matter to me. I am much less self conscious (as evidenced by my au natural hair color) and I say what is on my mind now instead of letting it fester....sometimes that gets me in trouble, but I don't mind!
More importantly, the confidence I have in what I am doing, combined with the skills I have developed over the years to find quality care have now helped me create a platform to help others. What a gift!
So for 2019, my resolution is to stay true to myself, take care of myself physically, emotionally and spiritually, and to continue to share what I know to ease the process for someone else. Not a bad way to start a new year!
Thank you for all of your support and well wishes, this is going to be a great year for my family and for "A Path To Hope".
Many people have asked me how my immediate family feels about what I am doing. Some say it with a bit of disgust, like how in the world could I put our family struggle in the spotlight, others say it with an air of pity, and some just say it with pure inquisitiveness.
To be absolutely honest, I did ask my family and they, without hesitation, said “that’s a great idea”, helped pick out the name and then quickly lost interest and went back to their pressing Instagram accounts.
I initially had a few people at my house to share our story and explain what the facebook page was all about, (I did not have a website yet). I realized after that day the immediate need for people to be able to access information easily and in a non-intimidating way. It was a no brainer, just simply share what I have learned, bring up topics of conversation and share some stories along the way.
What would it say about what we have gone through if I was not willing to use it as a way to help others? How could I allow myself NOT to share what I have learned so that another parent didn’t have to spend needless amounts of time trying to figure out how to get help for their child?
I hope my family feels proud of the fact that we are helping many people just by opening up the dialogue on diseases of the mind, and by making finding care that much easier. I hope they see my dedication to a cause that I never wanted to be passionate about. I hope they see the joy it brings me when I get positive feedback or a simple “thank you”. Nothing else like it. I hope they see my pride in how far we have come and how well things are progressing.
There have been other things I have done over the years that brought me personal satisfaction and pride. Helping out at fundraising events, getting new playground equipment for our neighborhood park and getting the old rusted equipment out, chasing after the mailman on foot while 8 months pregnant in a snowstorm because he muttered that I didn’t shovel my walkway and crumpled up my mail and threw it in the door. (EIGHT and ½ MONTHs Pregnant with a 20-month-old and a traveling husband), that was personally exhilarating, But nothing compares to watching a simple command from a friend ( "Holly, Just DO something, you have been talking about this for months”) take flight into an organization with real purpose.
So, the take away from all this is ....my family is Ok with me doing this, I am OK with me doing this, and if anyone is NOT ok with me doing this, well then, I feel extremely sorry for them!
I have definitely gotten cynical in my middle age years... I have zero tolerance anymore for any type of BS and will obviously fight tooth and nail for what I believe in. But even the minute day to day irritants are beginning to annoy me.... take the impending explosion of Christmas cards that will make their way into my mailbox and into my psyche.
I get it, I was the same, dress the kids up in the best, perfect lighting, perfect smiles ( only took an hour, bribery, 85 pictures to get "the one", you get the idea...now all I want is to find the one pic that in some small way captures a fleeting moment of combined happiness. No more perfect shot, I don't have the strength to fight for that anymore. No matching outfits on the beach, I am lucky they remembered to pack ANY clothes. No yuletide greetings at the Christmas tree farm, well be lucky if there is a tree left when everyone gets home from college and has time to go get the tree. No, our card will be just a picture that makes ME happy.
I will try my best not to be jaded by the perfect family pictures I have yet to take by professional photographers, or the pic from the fabulous vacation that we did not take because we were focused on much more important health issues, or the new house pic with the perfectly decorated mantle, unlike the one I threw together from HomeGoods.
I admit, those bother me and I am not sure why, but only for a little while. When I sit and look at my beautiful, yet not well-coiffed crew, I am so incredibly grateful that we are who we are, that we are not caught up in the BS, that we live as we live and that we love as we love. Intensely, completely, and unconditionally.
I have to write this story because it is a cautionary tale. One that explores the reality of mental health services at most colleges and universities. As with many small to large size institutions, the college my son attends is so backlogged with students seeking mental health services, that when he went for his intake appt, he was put on a waiting list for therapy. A waiting list….. for a student with severe anxiety. A waiting list…. after it took him everything he had to walk into that health center and ask for help. A wait list …..because he was told, “we don’t have any slots left”. Well then, I suggest adding more slots!
Waiting for therapy not being an option, I began my search to find a therapist near the school. A therapist he will agree to see, that hopefully takes insurance, and that has availability around his school schedule, a piece of cake. I do my usual search and I see one that may be promising, close to school, 5-star rating (no comments, just rating). I feel urgency to find help so I call without doing my due diligence. “Hello, …sure I can help, you have called the right place, I am running out, can you call this number at 2:30 today?” “Umm, Ok I said” Bought me some time, a blessing as it turned out. I start doing my REAL search, digging to get the real picture on this” therapist”, boy am I glad I did….
In one description it said under education, “…attended a college” a college, of mechanical bull-riding? Of hard knocks? Who knows, didn’t say. No information on his education except “graduated in 1981”, from where? Middle School? So I google earth the practice address…… it is a house with overgrown weeds, a broken down car in the driveway and bars on the windows. Umm, no thank you....NEXT!!!
I continue my research and after calling a few (One sounded like she just woke up, one sighed heavily and said “I’m busy, probably can’t fit him in” and then the one who dove right into her fee schedule before I even told her why I needed to have my son seen. But then... I made a call that will hopefully be the turning point we have been looking for. The next therapist I called, answered the phone, ( which she said she never usually does, she had forgotten her keys, went back into the office and answered a number she did not recognize) She spoke to me for a good 20 minutes as I explained my son’s story and she gave me a time to see her and said, “let’s see if he likes working with me and go from there.” Well he did, and she has done more for him in the few weeks we have seen her then in the past 15 months combined. Cautious optimism. But like I have said before, I bought and returned 12, yes 12, prom dresses before we found the right fit for my daughter, I am certainly going to shop around until I find the right fit for a therapist for my son!
Know what is funny about being a mom of a 19,18, and 14 yr old? The things I used to do to make things all better just don't cut it anymore. All it took was a matchbox car for Jack, A Polly Pocket for Grace, and some Legos for Elizabeth and all was right with the world. A kiss on the cheek for a scraped knee, a hug, and snuggle for a "sad heart". Oh, how I miss those days.
I have had to learn a new parenting style that, I quite frankly, do not like. I don't want to ask my kids if they are anxious if they know the dangers of drinking and driving if they understand what date rape drugs are. No, I don't like it one bit. I don't want to lay awake wondering if they are safe walking across campus or if their anxiety is back, or wonder what they meant by that last text...no, not a fan.
But then one day, out of the blue, your 20 yr old texts you "Thank you Mom for everything, just wanted to say that" and your worries fade away and you realize that you raised an amazing young adult who appreciated all that worry, the hugs, the kisses, the "prizes" and a new relationship of mutual respect and admiration is forming,,,, and that my friends, does not suck one bit!!!
Prepare yourself, I have things to say...
I am so surprised by the stigma that still exists in light of all the attention that has recently come to the issue of mental health. I have said before that I refuse to use the term "Mental Illness", (I cringe as I type that) because it is an inaccurate representation. We do not generalize cardiac issues as "cardiac illness" or "pulmonary illness". Someone who suffered a stroke is not "neurologically ill"...so why is that term used to generalize chemical imbalances in the brain or altered realities or any of the numerous variations of this particular medical disorder? Why are they lumped into one term that has come to be feared and misunderstood?
Just imagine if the stigma was gone and we had open conversations about anxiety, depression, racing thoughts, lack of sleep, fear, loneliness, isolation. Maybe, just maybe more treatment would be available, that whole supply and demand thing. Maybe just maybe, insurance companies would see the health benefits of regularly scheduled mental health visits just like routine mammograms, yearly physicals, dental checkups, etc.
While I am not foolish enough to think anything will change anytime soon, I am optimistic enough to see that change is possible, that starting the conversation may make a difference. And I do not know about you, but for me, reaching someone, anyone and helping them see another day would be more than enough reward for me.
So I will continue to post info, have meetings, tell our story, and do whatever I can to make whatever difference I can make.
Thank you for your time and support.....this truly is a gift to me to be able to do this and I pray that it is making a difference.
My hope is to get this "tell someone" slogan circulating among children and young adults as a conversation starter. So spread the word!!!
I truly have no idea what a "blog" is but I do have stories to tell, so sit back, grab that DD coffee and enjoy my version of a blog post......
Let me tell you about what I call "God winks" and one such wink shortly after my son came home, we entered him into an eating disorder "partial hospitalization" program ( which simply means an extended day 8am-2 pm program Mon through Fri). We realized about 3 weeks in that this was not the right fit and got a second opinion to confirm that ( that is another great blog post I will get to at some point). When he exited the program a few weeks later, we needed to come up with something for him to fill his days and give him a purpose. I had the brilliant ( yup) idea and surprisingly, my husband agreed...remodel the kids' bathroom and have my son help with the construction! ( Thank you ladies, I am still amazed that I pulled that one off). So I set off to find a contractor. I got the name of one and called him for an estimate. Here's the God wink part, prepare your self! In enters Mark, incredibly friendly, polite, and very (very) talkative. I show him the project and add, "my son recently came home from college for a health issue and whoever I hire will need to allow him to help with demo and anything else he can do". Without hesitation, Mark says, "Help? I'll hire him full time, my guy literally just quit this morning!" Then he adds, "I am a believer and we only listen to Christian music, I don't tolerate swearing, I don't drink or smoke, does that bother you?" I then hugged him and said, " you are hired, there is a reason you were sent to me today!" My son worked for Mark full time for the next several months and they spent their days talking about the bible, redemption and overcoming obstacles. I will never be able to thank Mark enough for his patience and guidance towards my son. Valuable life lessons were learned and now my son can help my husband with household projects.